Drastically Drifting

One of the hardest aspects of a medication holiday is the fact that even when I feel coherent, I find it impossible to focus in any meaningful way. Although I was out for three different one to two hour blocks today, I also had more energy when I was awake. Yet, even with those moments of lucidity, I found it impossible to do anything that I truly needed to do – no correcting, no financial data entry, no office organizing. I did manage to wash a load of dishes, but that was it. Fortunately, I am more at ease with my rudderless approach to my day, but I still worry about the eventual impact that un-done work will have on my life. Those are the thoughts and burdens that I need to release. They are the things that drag me under far too often.

I am getting better at recognizing moments like this one. Even as I type this, I tell myself to breathe and to relax. My energy and focus during a medication holiday are minimal at best. Thus, I can have no expectation that I will accomplish anything during a med break, no matter how much I would “like” to get something done. I can also take comfort in the fact that I should be slightly more functional tomorrow (Monday) as a direct result of taking the time to clean my stimulant out of my body for four days. I hope I can find a better way to take medication holidays more consistently, so I don’t need to have 4 or 5 day breaks once a year. We will see what 2010 brings as I move forward constantly trying to find better ways to live with my narcolepsy.

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Knightly Commentary

This blog is an adventure in discovering who I am, particularly as I learn to live with my friend, narcolepsy. While the disease has drastically impacted my life, this blog will also reflect the many things I do and love that narcolepsy won't and can't take away. More than anything, this blog will be about me returning to health. If that helps or entertains or amuses or upsets others, so be it. I just know that I need to write about where I am and where I'm going. Thanks.

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