Often, I find myself commenting on the bizarre nature of time. Much of the past year and a half has perplexed me because time seems to fly by as it lasts forever, a truly insane paradox. While I know that my daily emphasis on living in the moment is a primary reason for this strange [...]
Life with narcolepsy seems to get weirder and weirder at times. My wife and daughter are gone for the weekend. Often, having our house to myself has meant that I watch movies and lay around the house, especially when I have been pushing myself. Even though I have been driving myself at work, today was [...]
My week has been bizarre. My energy seemed to wane throughout the week with each morning becoming more difficult. Yet, in the midst of that exhaustion, I managed to do some cleaning, to help out my team members by correcting our students’ quizzes and homework, and to get somethings done for a church group and [...]
It is late, and I need to sleep, but I needed to report that my med holiday seems to have helped some. I took my amphetamine today for the first time since the morning of December 30. While I did not feel a significant improvement in its effectiveness, I do think that I was more [...]
The one post I started in November went unfinished until December 5th. Nothing could sum up the past few weeks better than that reality. Daily life has been a constant series of overwhelming occasions. Even more frustrating is that fact that nothing major has taken place within the scope of my existence. My family has [...]
I arrived safe and sound (other than my ridiculous sinuses continuing to produce infected mucus) at the Minneapolis/Saint Paul airport about 4:30 PM CDT. I hope my live blogging from the last session that I saw (Dr. Faraco) captures how cool I think her and Dr. Mignot’s research is. After that ended, though, my life [...]
After doing a decent job of live blogging at Dr. Naiman’s session, I failed miserably at doing it at any other session. While I hope to do it again tomorrow, I have no regrets about my inability to live blog a second session today. Instead, I had marvelous conversations with a number of individuals. I [...]
I have only been to two Narcolepsy Network national conferences, but the opening fun tonight BLEW AWAY last year’s Friday night. The planning committee had conceived of the idea that we should have a sing-a-long with “re-writes” of songs, making popular tunes have lyrics about narcolepsy. I had glanced at them only a little before [...]
I spent my afternoon helping with conference set up,. Although I did more than I had planned (and possibly more than I should have done), I greatly enjoyed seeing various PWNs who I first met a year ago. The true blessing of a conference like this is that people with a chronic condition like narcolepsy [...]
We had a fantastic day on the road today. We experienced little heavy traffic, avoided any and all foul weather, and got from Hammond, IN to Saint Paul in LESS than eight hours. That includes two pit stops (one of which was also a re-fueling stop) and an hour long lunch at the Norske Nook [...]