Life with narcolepsy seems to get weirder and weirder at times. My wife and daughter are gone for the weekend. Often, having our house to myself has meant that I watch movies and lay around the house, especially when I have been pushing myself. Even though I have been driving myself at work, today was [...]
It is late, and I need to sleep, but I needed to report that my med holiday seems to have helped some. I took my amphetamine today for the first time since the morning of December 30. While I did not feel a significant improvement in its effectiveness, I do think that I was more [...]
The whirlwind of time has again swept me a month forward in time. While I cannot believe that a month has passed since the conference, I also feel like I have lived a year since then. The reality, though, is that I continue to struggle with getting my life on track. I am muddling through [...]
I am struggling to believe that I went aq week without posting. Sadly, that is in fact the reality, though. I found myself overwhelmed by meetings and events for most of the past week, and on Friday morning we departed on our trip. The strategic planning meetings on Monday and Tuesday were incredible, but they [...]
The day was definitely low key at my house today. My daughter had a friend here over night, and the two of them had fun creating a movie on my MacBook Pro. They also played air hockey, goofed around, and enjoyed the Wii. My wife spent most of the day resting, but is getting to [...]
I chose not to push myself at all today. While I desperately want to be more productive, I knew after yesterday that I would be a fool to drive myself today. Thus, I got up slowly and thoroughly enjoyed the long “talk time” with my wife. It amazes me each week how wonderful it is [...]
In the cosmic ebb and flow of my life, I knew a day like today was coming soon. Last night, for the third night in a row, I did not make it to my bed until “today” (meaning post-midnight). While it is summer, and I do not have looming deadlines, I can ill afford to [...]
I have not slept well (or much) the last two nights. While that is NOT a good thing, my mood today is surprisingly upbeat. I know a piece of that is that I had a good meeting with my psychiatrist today. He is quite down-to-earth, but has also challenged me in the past to be [...]
The last day or so have gone decently for me. While I do still feel adrift, I am having spurts of success when it comes to knocking one or two things off my ever-growing list. Beyond the finances, I filed somethings in our office, and I managed to get some tasks done for MOONS-MN. Most [...]