Many of my colleagues at school subscribe to the following axiom, “Never make major life decisions in February.” The logic is fairly simple. As an educator (particularly in Minnesota), no month of the school year is more difficult than February. Cabin fever is settling in completely – both for adults and students – as your [...]
I have only been to two Narcolepsy Network national conferences, but the opening fun tonight BLEW AWAY last year’s Friday night. The planning committee had conceived of the idea that we should have a sing-a-long with “re-writes” of songs, making popular tunes have lyrics about narcolepsy. I had glanced at them only a little before [...]
Although I seem to be handling my struggles better, I find it infuriating that my narcolepsy seems worse than ever. I know that my condition moves in cycles, and I am clearly in a down turn at this time. Still, getting up in the morning is more difficult, and my evening peter out far sooner [...]
I awoke today feeling like I had been run over by a car. There seems to be no definitive reason for this. I have not slept on any bathroom floors. I took both doses of Xyrem. I laid off exercising excessively for the last two days because I was feeling run down. Why in the [...]
Apparently, when your spouse gets sick, it means you can potentially get the same thing. Whatever messed up my wife’s stomach on December 26 got me too. I spent all day yesterday feeling horrid. Thankfully, I am much better today. My bowels are still dicey, but at least I feel like I can eat something. [...]
First and foremost, I must say that day five is definitely better than day four. I still don’t know if it is the natural course of my med holiday, or the acupuncture, but I definitely had more energy today. The morning was still awful (I finally got out of bed at 9:30 AM because I [...]
Today, perhaps for the first time ever, my therapist could NOT stop smiling during our session. It was truly incredible. Of course, it might be that nearly everything I said at today’s session had a positive tone (or at least undertone). When I was thinking about today’s session, while at school yesterday, [...]
I find it fascinating how a weekend can spin on a dime. Yesterday was fantastic, while today is not. My day has been alright. I actually held to some scheduled times that I set for myself (which is progress), but my mid-afternoon and evening fell apart. In some ways I got swept [...]
At times I get extremely upset with my medical care and that of narcoleptics in general. While some of that frustration is justified, the reality is that most of my physicians have been outstanding. Honestly, only a handful of doctors in the world have a deep understanding of narcolepsy and its causes. In the last [...]
I had thought my next blog would be about the amazing experience of being in my men’s group. I also considered a blog entry on the importance of therapy. A third topic choice was the vitality of friendship and its importance in my life. Nowhere in my planned list of entries was “completely insane day [...]