Faith

Somewhat Successful

Sadly, I am writing well past my bed time, yet again. That said, I am handling things decently. Over the last few years, I have struggled mightily when I have gone back to work after longer breaks. Regularly, my expectations are far too high. Needless to say, I worried that returning to school after not [...]

Contented Conclusion

I arrived safe and sound (other than my ridiculous sinuses continuing to produce infected mucus) at the Minneapolis/Saint Paul airport about 4:30 PM CDT. I hope my live blogging from the last session that I saw (Dr. Faraco) captures how cool I think her and Dr. Mignot’s research is. After that ended, though, my life [...]

Jetting to Jacksonville

I awoke this morning in a huge hotel room. The national Narcolepsy Network patient conference begins today in Jacksonville, Florida; I arrived late last night (technically, early this morning). While I remain uneasy about being here, I must confess that my beautiful view of the Saint John’s River certainly makes me glad for the [...]

Foolish and Frustrating Fourth

What a difference a day makes! I knew that I would pay a price for staying yesterday (and for not worrying about the energy that I was expending), but I had no idea that level, extent, or immediacy that the payback would affect my entire family. Narcolepsy reared its ugly head and brought along some [...]

Sad and Surreal

Somehow, it is still May. Although I have not written for weeks, it feels like it has been a year. While I know that I have managed life, work, home, and health reasonably well, I am frustrated that I have not found time for me. I need to blog. I need to exercise. I need [...]

Running Ragged

Driving my car today, I wondered how coherent I actually was. I did not doubt my ability to navigate effectively and accurately. My confidence was also high in my driving skills. At the same time, I am painfully aware that I am fuzzy on the exact details of the journey home. Plus, when I finally [...]

Sunny Saturday

While my body is exhausted, I have had a wonderful day. Today was day two of the annual WAFC Fools Fest. We still have not won any games, but we staged a remarkable comeback in our final game. We were down 8 to 1 at the end of the first half, but only lost the [...]

February Funk Follows January Junk

It is WAY past my bedtime. Somehow, though, I am still awake. For the third night in a row, I am up past midnight. Not good. I am out of sorts and definitely “off.” I am heading to bed in a moment, but I wanted to post. Stunningly, January was my worst month ever, in [...]

Yin Yang Year

Happy New Year! It occurred to me today, as I drove around Saint Paul (and the Twin Cities) like a mad man, that I should spend some time reflecting on this past year. It is breathtaking to realize that one year ago I could feel hope slipping away yet again. In fact, as I entered [...]

December Drifting

First and foremost, I must say that day five is definitely better than day four. I still don’t know if it is the natural course of my med holiday, or the acupuncture, but I definitely had more energy today. The morning was still awful (I finally got out of bed at 9:30 AM because I [...]

Knightly Commentary

This blog is an adventure in discovering who I am, particularly as I learn to live with my friend, narcolepsy. While the disease has drastically impacted my life, this blog will also reflect the many things I do and love that narcolepsy won't and can't take away. More than anything, this blog will be about me returning to health. If that helps or entertains or amuses or upsets others, so be it. I just know that I need to write about where I am and where I'm going. Thanks.

Knightly Narcolepsy Network Convention Countdown

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Knightly Archives