By Main Man on 14 February 2010
Life with narcolepsy seems to get weirder and weirder at times. My wife and daughter are gone for the weekend. Often, having our house to myself has meant that I watch movies and lay around the house, especially when I have been pushing myself. Even though I have been driving myself at work, today was [...]
Posted in Blessings, Chores, Cleaning, Depression, Exhaustion, Family, Gratitude, Hope, Insights, Love, Marriage, Narcolepsy, Parenting
By Main Man on 1 February 2010
Many of my colleagues at school subscribe to the following axiom, “Never make major life decisions in February.” The logic is fairly simple. As an educator (particularly in Minnesota), no month of the school year is more difficult than February. Cabin fever is settling in completely – both for adults and students – as your [...]
Posted in Anger, Depression, Education, Emotions, Empathy, Exhaustion, Family, Frustration, Healthcare, Humility, Insights, Narcolepsy, Parenting
By Main Man on 12 January 2010
Sadly, I am writing well past my bed time, yet again. That said, I am handling things decently. Over the last few years, I have struggled mightily when I have gone back to work after longer breaks. Regularly, my expectations are far too high. Needless to say, I worried that returning to school after not [...]
Posted in Balance, Emotions, Exercise, Faith, Family, Frustration, Gratitude, Healing, Honesty, Hope, Medication Holiday, Narcolepsy, Wisdom
By Main Man on 4 January 2010
It is late, and I need to sleep, but I needed to report that my med holiday seems to have helped some. I took my amphetamine today for the first time since the morning of December 30. While I did not feel a significant improvement in its effectiveness, I do think that I was more [...]
Posted in Blessings, Chores, Excitement, Exhaustion, Family, Gratitude, Healing, Hope, Medication, Medication Holiday, Narcolepsy, Scheduling, Wisdom
By Main Man on 2 January 2010
Stunningly, it is twenty-ten. Although I find myself appreciating most moments of every day, I’m awed that the first decade of the twenty-first century has almost passed. Depending on one’s perspective, this new year marks the start of the second decade, or the end of the first. Either way, things have raced along at a [...]
Posted in Confusion, Exercise, Exhaustion, Family, Frustration, Healthcare, Illness, Medication Holiday, Narcolepsy, Support, Travel, Wisdom
By Main Man on 18 December 2009
I continue to cling to the hope that some day I will once again find a routine or pattern for my daily life. Sadly, I also realize that my dream seems to becoming more and more of a fantasy. For the life of me, I cannot establish any level of normalcy in my life. Although [...]
Posted in Anger, Balance, Confusion, Education, Exhaustion, Family, Frustration, Healthcare, Medical Research, Narcolepsy, Sinuses, Travel
By Main Man on 5 December 2009
The one post I started in November went unfinished until December 5th. Nothing could sum up the past few weeks better than that reality. Daily life has been a constant series of overwhelming occasions. Even more frustrating is that fact that nothing major has taken place within the scope of my existence. My family has [...]
Posted in Blessings, Confusion, Depression, Emotions, Exercise, Exhaustion, Family, Frustration, Gratitude, Honesty, Marriage, Narcolepsy, Parenting
By Main Man on 5 December 2009
The whirlwind of time has again swept me a month forward in time. While I cannot believe that a month has passed since the conference, I also feel like I have lived a year since then. The reality, though, is that I continue to struggle with getting my life on track. I am muddling through [...]
Posted in Chores, Cleaning, Confusion, Depression, Emotions, Exhaustion, Family, Fear, Frustration, Love, Marriage, Narcolepsy, Relationships, Uncategorized
By Main Man on 18 October 2009
Somehow, I have managed to let another month pass without posting. Writing about this crazy condition is vitally important to me, but the “basics” of my life have felt horribly overwhelming. I also think that either my narcolepsy is intensifying, or my amphetamine is diminishing in its impact. of course, there is actually no way [...]
Posted in Anger, Confusion, Depression, Education, Exhaustion, Family, Friends, Frustration, Honesty, Loss, Narcolepsy, Narcolepsy Network
By Main Man on 9 August 2009
We had a fantastic day on the road today. We experienced little heavy traffic, avoided any and all foul weather, and got from Hammond, IN to Saint Paul in LESS than eight hours. That includes two pit stops (one of which was also a re-fueling stop) and an hour long lunch at the Norske Nook [...]
Posted in Blessings, Driving, Family, Friends, Gratitude, Honesty, Hope, Humor, Joy, Marriage, Narcolepsy, Parenting, Sharing, Travel