Often, I find myself commenting on the bizarre nature of time. Much of the past year and a half has perplexed me because time seems to fly by as it lasts forever, a truly insane paradox. While I know that my daily emphasis on living in the moment is a primary reason for this strange [...]
Life with narcolepsy seems to get weirder and weirder at times. My wife and daughter are gone for the weekend. Often, having our house to myself has meant that I watch movies and lay around the house, especially when I have been pushing myself. Even though I have been driving myself at work, today was [...]
My week has been bizarre. My energy seemed to wane throughout the week with each morning becoming more difficult. Yet, in the midst of that exhaustion, I managed to do some cleaning, to help out my team members by correcting our students’ quizzes and homework, and to get somethings done for a church group and [...]
Sadly, I am writing well past my bed time, yet again. That said, I am handling things decently. Over the last few years, I have struggled mightily when I have gone back to work after longer breaks. Regularly, my expectations are far too high. Needless to say, I worried that returning to school after not [...]
Yesterday, I had my last appointment with my current psychiatrist. He is retiring. Although I only see him for 20 minutes every 6 months, I will miss those appointments. My therapist has been a far better help as I continue to learn how to live with narcolepsy, but my psychiatrist definitely made an impact on [...]
It is late, and I need to sleep, but I needed to report that my med holiday seems to have helped some. I took my amphetamine today for the first time since the morning of December 30. While I did not feel a significant improvement in its effectiveness, I do think that I was more [...]
The one post I started in November went unfinished until December 5th. Nothing could sum up the past few weeks better than that reality. Daily life has been a constant series of overwhelming occasions. Even more frustrating is that fact that nothing major has taken place within the scope of my existence. My family has [...]
I arrived safe and sound (other than my ridiculous sinuses continuing to produce infected mucus) at the Minneapolis/Saint Paul airport about 4:30 PM CDT. I hope my live blogging from the last session that I saw (Dr. Faraco) captures how cool I think her and Dr. Mignot’s research is. After that ended, though, my life [...]
Invariably, I was tired enough last night that I managed to “miss” my second dose at 2 AM. I did take it at 3 AM , but between that and my overexertion yesterday, I did not drag myself out of bed until 9:05 AM – after the first session started. Apparently, Dr. Rye of Emory [...]
I have only been to two Narcolepsy Network national conferences, but the opening fun tonight BLEW AWAY last year’s Friday night. The planning committee had conceived of the idea that we should have a sing-a-long with “re-writes” of songs, making popular tunes have lyrics about narcolepsy. I had glanced at them only a little before [...]