Healthcare

Fighting February Funk

Many of my colleagues at school subscribe to the following axiom, “Never make major life decisions in February.” The logic is fairly simple. As an educator (particularly in Minnesota), no month of the school year is more difficult than February. Cabin fever is settling in completely – both for adults and students – as your [...]

New, Not Nicer

Stunningly, it is twenty-ten. Although I find myself appreciating most moments of every day, I’m awed that the first decade of the twenty-first century has almost passed. Depending on one’s perspective, this new year marks the start of the second decade, or the end of the first. Either way, things have raced along at a [...]

Crazed and Consternated

I continue to cling to the hope that some day I will once again find a routine or pattern for my daily life. Sadly, I also realize that my dream seems to becoming more and more of a fantasy. For the life of me, I cannot establish any level of normalcy in my life. Although [...]

Narcolepsy Knowledge

The keynote today is Dr. Juliette Faraco, who is an associate of Dr. Mignot. Dr. Mignot had a last minute conflict, thus Dr. Faraco is presenting his research to us. She begins with a basic primer on DNA and the characteristics of the cell. She also provides a brief explanation of SNP (single nucleotide polymorphisms [...]

Searching Sleepiness and Holistic Helping

Invariably, I was tired enough last night that I managed to “miss” my second dose at 2 AM. I did take it at 3 AM , but between that and my overexertion yesterday, I did not drag myself out of bed until 9:05 AM – after the first session started. Apparently, Dr. Rye of Emory [...]

Excessive Exhaustion

Although I seem to be handling my struggles better, I find it infuriating that my narcolepsy seems worse than ever. I know that my condition moves in cycles, and I am clearly in a down turn at this time. Still, getting up in the morning is more difficult, and my evening peter out far sooner [...]

Doctor Downer (and difficult decision)

Seven weeks ago, I got a letter from my sleep doctor’s office. Bluntly, it told me I better get in to see him, or they would stop filling my prescriptions. I called immediately, and today was the earliest appointment available. Given the tone of the letter, I checked if an appointment today would suffice. The [...]

Nasal Nightmare

Typically, I avoid discussing my other health woes here, both because they are minor in comparison to my narcolepsy and because I rarely can do much about them, so I avoid dwelling on them. That said, my sinuses threw me a curve ball today. I have had chronic sinusitis for years. I actually think that [...]

Merry Madness

I ended the medication holiday this morning. I didn’t get out of bed until 9 AM, but part of that was waiting for my daughter to get up. How cool is it that my daughter was the last one to wake up on Christmas morning? I have a super cool kid. We had to wait [...]

Faithful Fatigue

When I got out of bed this morning (I hesitate to call the experience “waking up”), I was convinced that day four would be far worse than day three. The extreme effort of feeding three cats left me exhausted for the next hour. I eventually stumbled to the living room and promptly slept for the [...]

Knightly Commentary

This blog is an adventure in discovering who I am, particularly as I learn to live with my friend, narcolepsy. While the disease has drastically impacted my life, this blog will also reflect the many things I do and love that narcolepsy won't and can't take away. More than anything, this blog will be about me returning to health. If that helps or entertains or amuses or upsets others, so be it. I just know that I need to write about where I am and where I'm going. Thanks.

Knightly Narcolepsy Network Convention Countdown

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