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By Main Man on 1 February 2010
Many of my colleagues at school subscribe to the following axiom, “Never make major life decisions in February.” The logic is fairly simple. As an educator (particularly in Minnesota), no month of the school year is more difficult than February. Cabin fever is settling in completely – both for adults and students – as your [...]
Posted in Anger, Depression, Education, Emotions, Empathy, Exhaustion, Family, Frustration, Healthcare, Humility, Insights, Narcolepsy, Parenting
By Main Man on 2 January 2010
Stunningly, it is twenty-ten. Although I find myself appreciating most moments of every day, I’m awed that the first decade of the twenty-first century has almost passed. Depending on one’s perspective, this new year marks the start of the second decade, or the end of the first. Either way, things have raced along at a [...]
Posted in Confusion, Exercise, Exhaustion, Family, Frustration, Healthcare, Illness, Medication Holiday, Narcolepsy, Support, Travel, Wisdom
By Main Man on 18 December 2009
I continue to cling to the hope that some day I will once again find a routine or pattern for my daily life. Sadly, I also realize that my dream seems to becoming more and more of a fantasy. For the life of me, I cannot establish any level of normalcy in my life. Although [...]
Posted in Anger, Balance, Confusion, Education, Exhaustion, Family, Frustration, Healthcare, Medical Research, Narcolepsy, Sinuses, Travel
By Main Man on 25 October 2009
The keynote today is Dr. Juliette Faraco, who is an associate of Dr. Mignot. Dr. Mignot had a last minute conflict, thus Dr. Faraco is presenting his research to us. She begins with a basic primer on DNA and the characteristics of the cell. She also provides a brief explanation of SNP (single nucleotide polymorphisms [...]
Posted in Education, Excitement, Healthcare, Hope, Insights, Medical Research, Narcolepsy, Narcolepsy Network, Technology, Wisdom
By Main Man on 24 October 2009
Invariably, I was tired enough last night that I managed to “miss” my second dose at 2 AM. I did take it at 3 AM , but between that and my overexertion yesterday, I did not drag myself out of bed until 9:05 AM – after the first session started. Apparently, Dr. Rye of Emory [...]
Posted in Balance, Blogging, Dreams, Eastern Ideas, Education, Excitement, Exercise, Gratitude, Healing, Healthcare, Heroes, Hope, Humor, Insights, Medical Research, Medication, Narcolepsy Network, Relationships, Serendipity, Sharing, Support, Therapy, Uncategorized, Wisdom
By Main Man on 19 October 2009
Although I seem to be handling my struggles better, I find it infuriating that my narcolepsy seems worse than ever. I know that my condition moves in cycles, and I am clearly in a down turn at this time. Still, getting up in the morning is more difficult, and my evening peter out far sooner [...]
Posted in Emotions, Empathy, Exhaustion, Frustration, Healthcare, Honesty, Loss, Medical Research, Medication, Narcolepsy, Narcolepsy Network
By Main Man on 23 July 2009
Seven weeks ago, I got a letter from my sleep doctor’s office. Bluntly, it told me I better get in to see him, or they would stop filling my prescriptions. I called immediately, and today was the earliest appointment available. Given the tone of the letter, I checked if an appointment today would suffice. The [...]
Posted in Anger, Confusion, Depression, Exhaustion, Fear, Frustration, Healthcare, Honesty, Loss, Medication, Narcolepsy, Stupidity
By Main Man on 13 April 2009
Typically, I avoid discussing my other health woes here, both because they are minor in comparison to my narcolepsy and because I rarely can do much about them, so I avoid dwelling on them. That said, my sinuses threw me a curve ball today. I have had chronic sinusitis for years. I actually think that [...]
Posted in Balance, Exhaustion, Healing, Healthcare, Illness, Narcolepsy, Sinuses
By Main Man on 26 December 2008
I ended the medication holiday this morning. I didn’t get out of bed until 9 AM, but part of that was waiting for my daughter to get up. How cool is it that my daughter was the last one to wake up on Christmas morning? I have a super cool kid. We had to wait [...]
Posted in Blessings, Education, Excitement, Family, Gratitude, Healthcare, Honesty, Hope, Humility, Insights, Love, Medication Holiday, My story, Narcolepsy, Parenting, Sharing, Technology, Wisdom
By Main Man on 24 December 2008
When I got out of bed this morning (I hesitate to call the experience “waking up”), I was convinced that day four would be far worse than day three. The extreme effort of feeding three cats left me exhausted for the next hour. I eventually stumbled to the living room and promptly slept for the [...]
Posted in Balance, Eastern Ideas, Gratitude, Healthcare, Honesty, Hope, Humility, Insights, Medication Holiday, Narcolepsy, Wisdom