Often, I find myself commenting on the bizarre nature of time. Much of the past year and a half has perplexed me because time seems to fly by as it lasts forever, a truly insane paradox. While I know that my daily emphasis on living in the moment is a primary reason for this strange [...]
Sadly, I am writing well past my bed time, yet again. That said, I am handling things decently. Over the last few years, I have struggled mightily when I have gone back to work after longer breaks. Regularly, my expectations are far too high. Needless to say, I worried that returning to school after not [...]
Yesterday, I had my last appointment with my current psychiatrist. He is retiring. Although I only see him for 20 minutes every 6 months, I will miss those appointments. My therapist has been a far better help as I continue to learn how to live with narcolepsy, but my psychiatrist definitely made an impact on [...]
One of the hardest aspects of a medication holiday is the fact that even when I feel coherent, I find it impossible to focus in any meaningful way. Although I was out for three different one to two hour blocks today, I also had more energy when I was awake. Yet, even with those moments [...]
The one post I started in November went unfinished until December 5th. Nothing could sum up the past few weeks better than that reality. Daily life has been a constant series of overwhelming occasions. Even more frustrating is that fact that nothing major has taken place within the scope of my existence. My family has [...]
I arrived safe and sound (other than my ridiculous sinuses continuing to produce infected mucus) at the Minneapolis/Saint Paul airport about 4:30 PM CDT. I hope my live blogging from the last session that I saw (Dr. Faraco) captures how cool I think her and Dr. Mignot’s research is. After that ended, though, my life [...]
After doing a decent job of live blogging at Dr. Naiman’s session, I failed miserably at doing it at any other session. While I hope to do it again tomorrow, I have no regrets about my inability to live blog a second session today. Instead, I had marvelous conversations with a number of individuals. I [...]
I spent my afternoon helping with conference set up,. Although I did more than I had planned (and possibly more than I should have done), I greatly enjoyed seeing various PWNs who I first met a year ago. The true blessing of a conference like this is that people with a chronic condition like narcolepsy [...]
I awoke this morning in a huge hotel room. The national Narcolepsy Network patient conference begins today in Jacksonville, Florida; I arrived late last night (technically, early this morning). While I remain uneasy about being here, I must confess that my beautiful view of the Saint John’s River certainly makes me glad for the [...]
One thing I know helps me is a set routine. Unfortunately, I do not feel like that has happened since the previous school year ended. I have come to expect that my summers will be all over the place. Because I teach an intensive creative writing course and then we travel, summer tends to be [...]