Often, I find myself commenting on the bizarre nature of time. Much of the past year and a half has perplexed me because time seems to fly by as it lasts forever, a truly insane paradox. While I know that my daily emphasis on living in the moment is a primary reason for this strange [...]
Life with narcolepsy seems to get weirder and weirder at times. My wife and daughter are gone for the weekend. Often, having our house to myself has meant that I watch movies and lay around the house, especially when I have been pushing myself. Even though I have been driving myself at work, today was [...]
My week has been bizarre. My energy seemed to wane throughout the week with each morning becoming more difficult. Yet, in the midst of that exhaustion, I managed to do some cleaning, to help out my team members by correcting our students’ quizzes and homework, and to get somethings done for a church group and [...]
Sadly, I am writing well past my bed time, yet again. That said, I am handling things decently. Over the last few years, I have struggled mightily when I have gone back to work after longer breaks. Regularly, my expectations are far too high. Needless to say, I worried that returning to school after not [...]
It is late, and I need to sleep, but I needed to report that my med holiday seems to have helped some. I took my amphetamine today for the first time since the morning of December 30. While I did not feel a significant improvement in its effectiveness, I do think that I was more [...]
One of the hardest aspects of a medication holiday is the fact that even when I feel coherent, I find it impossible to focus in any meaningful way. Although I was out for three different one to two hour blocks today, I also had more energy when I was awake. Yet, even with those moments [...]
I arrived safe and sound (other than my ridiculous sinuses continuing to produce infected mucus) at the Minneapolis/Saint Paul airport about 4:30 PM CDT. I hope my live blogging from the last session that I saw (Dr. Faraco) captures how cool I think her and Dr. Mignot’s research is. After that ended, though, my life [...]
The keynote today is Dr. Juliette Faraco, who is an associate of Dr. Mignot. Dr. Mignot had a last minute conflict, thus Dr. Faraco is presenting his research to us. She begins with a basic primer on DNA and the characteristics of the cell. She also provides a brief explanation of SNP (single nucleotide polymorphisms [...]
Invariably, I was tired enough last night that I managed to “miss” my second dose at 2 AM. I did take it at 3 AM , but between that and my overexertion yesterday, I did not drag myself out of bed until 9:05 AM – after the first session started. Apparently, Dr. Rye of Emory [...]
I have only been to two Narcolepsy Network national conferences, but the opening fun tonight BLEW AWAY last year’s Friday night. The planning committee had conceived of the idea that we should have a sing-a-long with “re-writes” of songs, making popular tunes have lyrics about narcolepsy. I had glanced at them only a little before [...]