Yesterday, I had my last appointment with my current psychiatrist. He is retiring. Although I only see him for 20 minutes every 6 months, I will miss those appointments. My therapist has been a far better help as I continue to learn how to live with narcolepsy, but my psychiatrist definitely made an impact on [...]
I continue to cling to the hope that some day I will once again find a routine or pattern for my daily life. Sadly, I also realize that my dream seems to becoming more and more of a fantasy. For the life of me, I cannot establish any level of normalcy in my life. Although [...]
The keynote today is Dr. Juliette Faraco, who is an associate of Dr. Mignot. Dr. Mignot had a last minute conflict, thus Dr. Faraco is presenting his research to us. She begins with a basic primer on DNA and the characteristics of the cell. She also provides a brief explanation of SNP (single nucleotide polymorphisms [...]
Invariably, I was tired enough last night that I managed to “miss” my second dose at 2 AM. I did take it at 3 AM , but between that and my overexertion yesterday, I did not drag myself out of bed until 9:05 AM – after the first session started. Apparently, Dr. Rye of Emory [...]
Although I seem to be handling my struggles better, I find it infuriating that my narcolepsy seems worse than ever. I know that my condition moves in cycles, and I am clearly in a down turn at this time. Still, getting up in the morning is more difficult, and my evening peter out far sooner [...]
This past week I twice tried to get decent photos of the full moon. The pictures from the first batch are okay. I have not actually looked at the second set yet. I want them because I am helping get the Midwest Organization of Narcolepsy Support – Minnesota chapter (MOONS-MN) organized. We have set up [...]
My plan is to post on topics from the conference throughout the next few days. I need to do this in small chunks or I will never get it done. Please feel free to use the comments section of each post as a place to ask questions. I feel like I learned something in every [...]