Scheduling

Freaky February Funk

Often, I find myself commenting on the bizarre nature of time. Much of the past year and a half has perplexed me because time seems to fly by as it lasts forever, a truly insane paradox. While I know that my daily emphasis on living in the moment is a primary reason for this strange [...]

Monday Meds

It is late, and I need to sleep, but I needed to report that my med holiday seems to have helped some. I took my amphetamine today for the first time since the morning of December 30. While I did not feel a significant improvement in its effectiveness, I do think that I was more [...]

Drastically Drifting

One of the hardest aspects of a medication holiday is the fact that even when I feel coherent, I find it impossible to focus in any meaningful way. Although I was out for three different one to two hour blocks today, I also had more energy when I was awake. Yet, even with those moments [...]

Pulsating Pain

My head feels like it is in a vice. The headache started around 3 PM today, and it is progressively building. Somehow, I managed to go get my daughter around 4 PM. Then, my wife, my daughter, three of my daughter’s friends, and I went to a play at my school. Thankfully, my wife drove. [...]

Deepening Depression

Today was hard. I had an okay day, but I truly felt paralyzed when it came to doing any work. There is so much on my plate, and I have no idea where to begin. Confusing the situation is the sensation that I have not done much just for me recently. Many of my actions [...]

Fighting Frustration

I have not slept well (or much) the last two nights. While that is NOT a good thing, my mood today is surprisingly upbeat. I know a piece of that is that I had a good meeting with my psychiatrist today. He is quite down-to-earth, but has also challenged me in the past to be [...]

Fading Focus

Summer is always a curve and a blessing for me. I LOVE that I actually have “free time” because I need it to recover from the frenetic pace of my school year. At the same time, I hate it because I am terrible with unstructured time. I have been doing better this summer, but I [...]

Flailing Frustration

Knowing that I have narcolepsy, I work diligently to have realistic expectations for myself. Certainly, I continue to overestimate (grossly) what I can accomplish – in a day, in a week, in a month. That said, though, I have gotten significantly better both in my estimation and in my acceptance of what I can accomplish. [...]

May Magic

Yet again, time has had its way with me. My calendar seems to jump entire weeks at a time. Thus, May has arrived and my brain is still in the middle of April. The frenetic pace of school has not lessened, rather it has picked up. Today, I managed to finish putting comments on numerous [...]

Washed out Wednesday

It always throws me when my body “catches up” with my life. I had a great weekend, seeing friends and playing a small amount of ultimate. I also enjoyed my visit to my friends’ home in Maryland. The added exercise in White Flint would have been nice to forgo, but I know that it too [...]

Knightly Commentary

This blog is an adventure in discovering who I am, particularly as I learn to live with my friend, narcolepsy. While the disease has drastically impacted my life, this blog will also reflect the many things I do and love that narcolepsy won't and can't take away. More than anything, this blog will be about me returning to health. If that helps or entertains or amuses or upsets others, so be it. I just know that I need to write about where I am and where I'm going. Thanks.

Knightly Narcolepsy Network Convention Countdown

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